EPAD papers identifies expectations related to learning risk status and preferences related to the content, quality, and follow-up of the disclosure process

  Summary: In clinical trials which target pathophysiological mechanisms associated with Alzheimer’s disease, research participants who are recruited based on biomarker test results should be informed about their increased risk of developing Alzheimer’s dementia. This paper presents the results of a qualitative focus group study of attitudes and concerns toward learning information about biomarker-based risk…