• Contact
  • EPAD Academy
Top Bar Menu
TwitterFacebookYouTube
Search...
EPADEPAD
EPAD
European Prevention of Alzheimer's Dementia Consortium
  • Home
  • About
    • Welcome to EPAD
    • Project Objectives
    • Project Structure
    • EPAD Partners
    • Coordination & Management
    • EPAD Q&A
  • Our research
    • Participation in EPAD
      • Participation in EPAD Cohort
      • EPAD Study Visits
      • Trial Locations
      • Participation FAQs
    • The Participant’s Experience
      • The Research Participant Panel
      • EPAD Stories
    • The EPAD platform
      • The EPAD Platform
      • EPAD Benefits
      • Clinical Candidate Selection
      • EPAD FAQs
      • Research Resources
  • Open Access Data
    • Overview
    • Access
    • Data
    • Samples
    • MRI Images
  • News & Publications
    • Latest News
    • Newsletters
    • Publications
    • Videos
Menu back  

Interview with Johannes Streffer

2018-07-25News

What is your current role in EPAD?

I have recently joined the executive committee of EPAD. The executive committee is suggested to follow up on the project to see if everything is performed as planned and help coordinate between different ongoing activities. As well, it is a group that can react to new developments e.g. if new partners want to join. The group is composed by representatives from different academic and industry partners in EPAD.
As a contributor from a pharmaceutical company, I am bringing my experience in early drug development into the group, with a specific focus on studying very early stages of Alzheimer’s disease, which has specific challenge in identification of study participants and clinical as well as biomarker measures.

 

What did you do prior to joining EPAD?

I have very recently been co-leading EMIF-AD as a subproject of IMI EMIF (European Medical Information Framework). This project targeted the understanding of very early stages of Alzheimer’s disease. Important questions where (I) how can we identify subjects that will later develop dementia very early (e.g. before they have clinical symptoms of the disease, (II) are there markers that predict faster (or slower) progression of symptoms, (III) how can we best coordinate between different centers and identify subjects in existing databases. This last activity was actually a very important activity supporting EPAD as well.

 

Tell us a bit about the institution/company/organisation you work for.

UCB biopharma is a mid-size Belgium pharmaceutical company, with a specific interest in therapies directed towards immunologic or neurologic disease. We are aiming at creating value for patients through novel therapeutic approaches. My training was as a medical doctor and I am specialized as Neurologist and Psychiatrist. The group I am heading is responsible for the first clinical studies in human volunteers and patients with the selected diseases. The methodologies are the precise same methodologies that are used in projects like EPAD or EMIF-AD.

 

What are your expectations from the EPAD project

I am very passionate about EPAD, as I will that the novel approach to Alzheimer disease studies. These studies need a broad collaboration and engagement of different stakeholders (e.g. patient organization, academic investigators, clinical research organizations and pharmaceutical industry).
EPAD is very well fitting in this frame and bringing all the right people to the table. The engagement and spirit in the group is wonderful, so I feel we have all ingredients for a successful projects and make a significant contribution towards a successful treatment for Alzheimer’s disease.

Share this post
FacebookTwitterLinkedInGoogle+
Related posts
The final EPAD dataset is now available to the entire research community
2020-11-30
ALZFORUM
Alzforum conference blog mentions EPAD
2020-11-30
EPAD v1500 dataset
New webpage dedicated to EPAD data and samples on the EPAD website
2020-11-18
ADDI launches new Workbench to foster greater global research innovation and accelerate breakthroughs in Alzheimer’s disease and related dementias
2020-11-17
New paper investigating the prediction of Alzheimer’s disease biomarker status
2020-11-12
The Alzheimer’s Disease Data Initiative supports EPAD
2020-11-06
Latest News
  • The final EPAD dataset is now available to the entire research community
    2020-11-30
  • ALZFORUM
    Alzforum conference blog mentions EPAD
    2020-11-30
  • EPAD v1500 dataset
    New webpage dedicated to EPAD data and samples on the EPAD website
    2020-11-18
  • ADDI launches new Workbench to foster greater global research innovation and accelerate breakthroughs in Alzheimer’s disease and related dementias
    2020-11-17
  • New paper investigating the prediction of Alzheimer’s disease biomarker status
    2020-11-12
View the EPAD Brochure
thumbnail of EPAD brochure
Speak to the EPAD team
thumbnail of speech bubbles
Twitter
Twitter
EPAD
EPAD
@IMI_EPAD

Thanks Aridhia for your partnership to facilitate the latest and final @IMI_EPAD #data release. This contains the data for over 2000 participants of the EPAD Longitudinal Cohort Study. Researchers who are interested to access to this dataset can visit ep-ad.org/erap twitter.com/aridhia/status…

reply retweet favorite
1:25 pm · 2021-01-25
Twitter
EPAD
EPAD
@IMI_EPAD

We would like to thank all our followers! A massive thanks also goes to our research participants & members for all their support! Looking back on the years of the @IMI_EPAD project, here's key pictures took at major events. Have a safe & Happy New Year! youtu.be/FeYsOBOhCeo

reply retweet favorite
8:55 am · 2021-01-18
Twitter
EPAD
EPAD
@IMI_EPAD

The videos from #30AEC are online! Check out the @IMI_EPAD presentations on #data sharing by @rodrigobarnes (@aridhia) & Colin Veal (@uniofleicester). Thanks @IMI2_NEURONET and @AlzheimerEurope for giving us the opportunity to present our work. imi-neuronet.org/2020-virtual… twitter.com/IMI2_NEURONET/…

reply retweet favorite
8:43 am · 2021-01-15
Twitter
EPAD
EPAD
@IMI_EPAD

Authors investigated #data from nine studies, including @IMI_EPAD, comprising a total of 60,004 assessed participants. If you want to explore the #Alzheimer's disease data landscape, visit adata.scai.fraunhofer.de @BirkenbihlC @ApitiusHofmann @ddomingof @Simon_Lovestone @TVB_cloud

reply retweet favorite
7:56 am · 2021-01-11
Twitter
EPAD
EPAD
@IMI_EPAD

Numerous studies have collected #Alzheimer's disease cohort #data sets. @BirkenbihlC and colleagues have evaluated the Alzheimer's disease data landscape from a patient‐level data‐centric perspective. @IMI_EPAD @IMI_EMIF @NACCALZ alz-journals.onlinelibrary.wi…

reply retweet favorite
7:48 am · 2021-01-11
Copyright © 2015-19 EPAD | Created by CMAST and Aridhia
  • Acronyms
  • Legal Notice
  • Privacy Policy
Bottom Menu

efpia-logo EU imi logo

This work has received support from the EU/EFPIA Innovative Medicines Initiative Joint Undertaking EPAD grant agreement nº 115736

This website uses cookies to improve your experience. Accept Read More
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled

Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.

Non-necessary

Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.