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EPAD opens up its data access system to the entire research community

2019-10-25News

The European Prevention of Alzheimer’s Dementia (EPAD) project, a highly innovative programme aiming to streamline the testing and development of preventative treatments for Alzheimer’s disease, is very pleased to announce the upcoming release of its first wave of data including the baseline data from the first 500 research participants (V500.0).

Researchers will now have access to the EPAD Research Access Process, designed to give academic researchers and institutions from all over the world a way of accessing the data collected in the EPAD Longitudinal Cohort Study. Study data access will be provided via secure online tools in order to facilitate collaboration between people and teams with similar research aims.

At today’s Alzheimer Europe conference in The Hague (Netherlands), Professor Craig Ritchie, EPAD Project Co-coordinator, explained the rationale of the EPAD V500.0 dataset and emphasised the transparency of the data set being used by the project team. He announced that the first data set (V500.0) will be available from 18th November and invited academic researchers and institutions from all over the world to begin the application process. This would allow applicants to register on-line and complete their request with all the accompanying information. Data workspaces containing the V500.0 data set will be live from 18th November.

For detailed information on the process for access, visit the following link.

The V500.0 data release represents the first formal public data release from the EPAD project for use by academic researchers and institutions worldwide. It will assist researchers to describe and compare their findings as well as in systematic reviews and meta-analyses. In the chosen nomenclature (V500.0): V=version, “500” is the number of sequentially recruited research participants in each dataset and ‘.0’ refers to the study visit the dataset includes up (visit 0 refers to the baseline data). Each Data set will have a DOI to reference the source of the data in subsequent publication:  doi:10.34688/epadlcs_v500.0_19.05.10

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.@AlzheimerEurope has published a new edition of its “Dementia in Europe” magazine. It includes a closing article on @IMI_EPAD. Our co-leads @craig_ritchie68 and Serge Van der Geyten, reflect on the achievements of the project. Download the PDF here: bit.ly/DementiaInEuro… twitter.com/AlzheimerEurop…

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12:40 pm · 2021-02-24
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Last week, we held the first local @IMI_EPAD community meeting among the Scottish research sites, collaborators, academics & scientists who have been involved in our Longitudinal Cohort Study and now continue to contribute to the study locally More info⤵️ ep-ad.org/2021/02/17/loc… pic.twitter.com/MTKmanCURk

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6:51 am · 2021-02-24
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Check out the new @AlzheimerEurope report on #DataSharing in #dementia #research, which reviews recent changes in EU research policy and sets out recommendations to improve data sharing. It includes case studies from ADNI, @IMI_EPAD and @IMI_EMIF. ⬇️ Bit.ly/DataSharing_AE twitter.com/AlzheimerEurop…

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2:39 pm · 2021-02-23
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Scottish @IMI_EPAD members have been invited to join the first #EPADcommunity meeting. Today, we're discussing about publications, #data access, communications, participant panel, #network & #collaborations. Nice to see some #epadistas sharing their insights 👨‍⚕️👩‍🔬👩‍💻 pic.twitter.com/O1hLAVxk0Q

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2:23 pm · 2021-02-17
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The new issue of the @IMI2_NEURONET #newsletter is out with latest news on @IMI_EPAD, @IMI_AMYPAD, @RADARCNS among others. Find out more here: bit.ly/Neuronet-Newsl… twitter.com/IMI2_NEURONET/…

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2:12 pm · 2021-02-15
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