EPAD - European Prevention of Alzheimer's Dementia

European Prevention of Alzheimer's Dementia

- Newsletter July 2017 -

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Welcome

Dear Friends and Colleagues,

We enter the summer holidays with gathering optimism and pride regarding the success of EPAD. Catalysed by a fantastic and regal meeting in Stockholm, we have turned the corner in setting up new sites over recent weeks which will inevitably lead to a dramatic increase in recruitment to the cohort. BBRC recruited their 100th research participant and in Edinburgh we are well into our annual follow up of the early recruits. 

We were also buoyed by the news that Boeringher Ingelheim are poised to commit a compound into the PoC for 2018 and the PoC protocol has been completed on schedule. While the recruitment into LCS and the finalising of the PoC protocol are fantastic achievements, in some ways they are the core of the project and should be seen as delivering on the business of EPAD. Reflecting on that - for me - the biggest innovation and real excitement is the launch of the EPAD Academy under the leadership of Miia and Carlos. Already we have well over 20 EPAD Fellows signed up and much work is being put in place to frame The EPAD Academy around their needs. The nurturing of the future academics and thought leaders in this space would be a privilege for EPAD to contribute to. The EPAD Academy will also be working hard in coming weeks to really drill down on our data, sample and research participant access processes. The data is flooding in and as we gather more data we gather more internal and external excitement towards analysis and academic output. It is critical that we manage this database so we derive not only the largest amount of scientific output but the greatest quality too - only then will we see the necessary impact .

The other big news is the partnerships being developed and formed with the IMI-2 AMYPAD Project and while the work on bringing these two huge projects into scientific and operational alignment is daunting at times - this is work that will yield a fantastic step change in our understanding of the role of PET-Amyloid Imaging in disease modelling as well as clinical use.

I truly hope you all have brilliant, well-earned breaks over summer and return invigorated for the challenges and prepared for the successes that EPAD will bring through to the end of 2017.

This electronic newsletter will be published quarterly and be accessible via the EPAD website (http://ep-ad.org/) and inform the Alzheimer’s community on EPAD’s main achievements, upcoming events as well as allow you to meet the scientists who make it all happen.

We hope you enjoy this issue of the EPAD newsletter! Happy Reading!

Craig Ritchie

EPAD Co-Coordinator

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EPAD announces a second wave of Trial Delivery Centres opened

Q2 2017 Highlight

EPAD announces a second wave of Trial Delivery Centres opened

EPAD is establishing a Europe-wide cohort of over 6,000 participants, of which 1,500 will be invited to participate in a trial to test new treatments for prevention of Alzheimer's dementia. The EPAD Longitudinal Cohort Study (EPAD-LCS) opened for recruitment in May 2016. It is a core part of the EPAD project that links participants in other cohorts and registers across …

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EPAD gets a royal welcome at its 3rd General Assembly

The Story behind the Picture

EPAD gets a royal welcome at its 3rd General Assembly

On 15-17 May, the EPAD project General Assembly took place in Stockholm, under the banner “From Delivery to Data”. It was hosted by the Karolinska Institutet and jointly sponsored by Boehringer Ingelheim and Lundbeck. The meeting provided a chance to gather everyone who work on the EPAD study to discuss its progress and future plans. The first day began with …

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Meet the EPAD team

Interview with Philip Hougaard

Interview with Philip Hougaard

What is your current role in EPAD? I am a biostatistician and therefore my key role is in the statistical work package (WP2). I have mostly been involved in writing the protocol for the proof-of-concept study, which has been evolving since I joined EPAD in February 2016. WP2 is also responsible for statistical modelling of the disease progression, which will …

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Interview with Isabelle Carrié

Interview with Isabelle Carrié

What is your current role in EPAD? I work as a clinical project manager in the Gérontopôle team at Toulouse University Hospital coordinated by Pr Bruno Vellas who is the EPAD National Lead for France. I was designated to be the national study coordinator for EPAD project in 2015. We are involved in two major Work Packages: WP3 for the …

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EPAD design

EPAD presents @

• A number of EPADistas will be present at the Alzheimer Europe Conference in Berlin (Germany) from 2 to 4 October 2017.

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Quarterly Quote

The most important thing is to see the person, not the disease.

 - HRH Queen Silvia of Sweden -

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