EPAD has new TDCs on board

The first quarter of 2018 started with great intensity! We were busy working towards opening new sites and improving recruitment. Positive results of our work have begun to come out in a short time with specific progress achieved. First of all, we are delighted to have reached a big milestone in February 2018 when our…

Interview with Harry Peaker

What is your current role in EPAD? As a Data Scientist at Aridhia, I support the development and maintenance of the Analytical Database for the EPAD Longitudinal Cohort Study. IQVIA securely transfer the collated project data from their EDC platform (Medidata Rave) to our digital research platform (AnalytiXagility) on a regular basis. We transform the…

EPAD publishes a paper in the Journal of Sociology of Health & Illness

Summary: Biomedical research aimed at the development of therapies for chronic and late‐onset conditions increasingly concentrates on the early treatment of symptom‐less disease. This broad trend is evidenced in prominent shifts in contemporary dementia research. Revised diagnostic criteria and new approaches to clinical trials propose a focus on earlier stages of disease and prompt concerns…

WP3 EPAD Registry paper in Alzheimer’s & Dementia

ABSTRACT: Introduction: It is a challenge to find participants for Alzheimer’s disease (AD) prevention trials within a short period of time. The European Prevention of Alzheimer’s Dementia Registry (EPAD) aims to facilitate recruitment by preselecting subjects from ongoing cohort studies. This article introduces this novel approach. Methods: A virtual registry, with access to risk factors…

EPAD is glad to be featured in The Lancet Neurology

On 22 March, The Lancet Neurology published an article entitled: “Frederik Barkhof: building bridges between disciplines” where EPAD and its sister project AMYPAD were featured. In this great article, Professor Frederik Barkhof, AMYPAD coordinator and member of the EPAD imaging scientific advisory group, was interviewed to share his early academic journey. The article can be downloaded…

Congratulations to the EPAD Trial Delivery Centre of the Month: BBRC (Barcelona, Spain)

We are very pleased to announce that the Barcelonabeta Brain Research Center (BBRC) was the most successful trial delivery centre (TDC) in February with 14 newly screened participants in the EPAD Longitudinal Cohort Study (LCS). Congratulations to the entire team (pictured)! The European Prevention of Alzheimer’s Dementia initiative (EPAD) recruited its first Spanish research participant…

EPAD papers identifies expectations related to learning risk status and preferences related to the content, quality, and follow-up of the disclosure process

  Summary: In clinical trials which target pathophysiological mechanisms associated with Alzheimer’s disease, research participants who are recruited based on biomarker test results should be informed about their increased risk of developing Alzheimer’s dementia. This paper presents the results of a qualitative focus group study of attitudes and concerns toward learning information about biomarker-based risk…