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The EPAD Longitudinal Cohort Study has now over 1,500 Research Participants

2019-03-07News

On 7 March, EPAD passes the mark of 1.500 research participants for its Longitudinal Cohort Study (LCS)! Congratulations to the Trial Delivery Center in Bristol, who recruited participant number 1500.

The largest ever public-private partnership in Alzheimer’s disease research, EPAD combines knowledge and expertise from 39 organisations across multiple sectors from academia and industry, bringing together a wealth of experience to its activities. By setting up a trial-ready cohort of research participants, creating a pan-European network of trial sites, developing a platform on which new compounds can be tested in a streamlined and efficient way, EPAD aims to accelerate the development of effective therapies.

We have developed three core strategies which deliver benefits for intervention owners and research participants.

  1. The Register: EPAD has created the first single, pan-European register of over half a million people across the risk spectrum for dementia.
  2. The Cohort: From this register, research participants are invited to join an EPAD cohort of at-risk subjects, the Longitudinal Cohort Study. This group will undergo standardised tests and follow-up over several years.
  3. The Trial: EPAD will select participants to take part in streamlined proof-of-concept (PoC) trials of drugs designed to prevent Alzheimer’s dementia

Watch the EPAD video for an overview of our approach.

Currently, EPAD has 21 study sites up and running across Europe and is adding new participants to the cohort every week. The consortium is now preparing the negotiations with the first intervention owner.

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  • Closing EPAD article published in the Alzheimer Europe magazine
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.@AlzheimerEurope has published a new edition of its “Dementia in Europe” magazine. It includes a closing article on @IMI_EPAD. Our co-leads @craig_ritchie68 and Serge Van der Geyten, reflect on the achievements of the project. Download the PDF here: bit.ly/DementiaInEuro… twitter.com/AlzheimerEurop…

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12:40 pm · 2021-02-24
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Last week, we held the first local @IMI_EPAD community meeting among the Scottish research sites, collaborators, academics & scientists who have been involved in our Longitudinal Cohort Study and now continue to contribute to the study locally More info⤵️ ep-ad.org/2021/02/17/loc… pic.twitter.com/MTKmanCURk

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6:51 am · 2021-02-24
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Check out the new @AlzheimerEurope report on #DataSharing in #dementia #research, which reviews recent changes in EU research policy and sets out recommendations to improve data sharing. It includes case studies from ADNI, @IMI_EPAD and @IMI_EMIF. ⬇️ Bit.ly/DataSharing_AE twitter.com/AlzheimerEurop…

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2:39 pm · 2021-02-23
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Scottish @IMI_EPAD members have been invited to join the first #EPADcommunity meeting. Today, we're discussing about publications, #data access, communications, participant panel, #network & #collaborations. Nice to see some #epadistas sharing their insights 👨‍⚕️👩‍🔬👩‍💻 pic.twitter.com/O1hLAVxk0Q

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2:23 pm · 2021-02-17
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The new issue of the @IMI2_NEURONET #newsletter is out with latest news on @IMI_EPAD, @IMI_AMYPAD, @RADARCNS among others. Find out more here: bit.ly/Neuronet-Newsl… twitter.com/IMI2_NEURONET/…

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2:12 pm · 2021-02-15
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