{"id":1107,"date":"2017-05-15T12:00:56","date_gmt":"2017-05-15T10:00:56","guid":{"rendered":"https:\/\/alzheimer.noemi.lu\/?p=1107"},"modified":"2024-06-28T14:05:35","modified_gmt":"2024-06-28T13:05:35","slug":"epad-gets-a-royal-welcome-at-its-3rd-general-assembly","status":"publish","type":"post","link":"https:\/\/ep-ad.org\/index.php\/2017\/05\/15\/epad-gets-a-royal-welcome-at-its-3rd-general-assembly\/","title":{"rendered":"EPAD gets a royal welcome at its 3rd General Assembly"},"content":{"rendered":"<p><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">On 15-17 May, the EPAD project General Assembly took place in Stockholm, under the banner \u201cFrom Delivery to Data\u201d. It was hosted by the <\/span><\/span><span style=\"margin: 0px; color: windowtext; font-family: 'Arial',sans-serif; font-size: 12pt; text-decoration: none;\">Karolinska Institutet<\/span><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\"> and jointly sponsored by Boehringer Ingelheim and Lundbeck. The meeting provided a chance to gather everyone who work on the EPAD study to discuss its progress and future plans.<\/span><\/span><\/p>\n<p><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">The first day began with project leaders Craig Ritchie, Serge van der Geyten and Miia Kivipelto welcoming more than 150 delegates to the meeting. They gave a general overview of the project and introduced the agenda for the coming days. Each WP then had the opportunity to present its remit and progress so far.<br \/>\n<\/span><\/span><\/p>\n<p><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">On 16 May, the General Assembly gathered for its official inauguration by HRH Queen Silvia of Sweden (pictured), who welcomed delegates to Stockholm and the first session of the day on \u201cthe future of AD research\u201d. The programme for this second day focussed on the status of the EPAD Longitudinal Cohort Study (LCS) creating an environment for sustained success; the \u201cEPAD enhancement programme\u201d; and the \u201cEPAD Academy\u201d. In addition, Dr Gill Farrar from GE Healthcare was invited to do a presentation on EPAD\u2019s collaboration with its sister project AMYPAD (AMYloid imaging to Prevent Alzheimer\u2019s Disease). There, she gave also an overview of the AMYPAD partners and objectives. For more information on the AMYPAD initiative, follow\u00a0<a href=\"https:\/\/twitter.com\/imi_amypad?lang=fr\">@IMI_AMYPAD<\/a> on Twitter and visit its website recently launched, <\/span><\/span><a href=\"http:\/\/amypad.eu\/\"><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #0563c1;\">http:\/\/amypad.eu\/<\/span><\/span><\/a><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">.<br \/>\n<\/span><\/span><span style=\"margin: 0px; color: windowtext; font-family: 'Arial',sans-serif;\"><span style=\"font-size: medium;\">Over the lunch break, <\/span><\/span><span style=\"margin: 0px; color: windowtext; font-family: 'Arial',sans-serif; text-decoration: none;\"><span style=\"font-size: medium;\">WP8 Ethical, Legal and Social Implications<\/span><\/span><span style=\"margin: 0px; color: windowtext; font-family: 'Arial',sans-serif;\"><span style=\"font-size: medium;\"> held a Satellite Symposium on \u201cConceptualising Alzheimer\u2019s Disease, hosted by Krista Tromp from <\/span><\/span><span style=\"margin: 0px; color: windowtext; font-family: 'Arial',sans-serif; text-decoration: none;\"><span style=\"font-size: medium;\">VUmc Amsterdam<\/span><\/span><span style=\"margin: 0px; color: windowtext; font-family: 'Arial',sans-serif;\"><span style=\"font-size: medium;\">. Dr Luc Truyen of Janssen delivered the research perspective, Dr Dianne Gove presented Alzheimer Europe\u2019s position, and finally Dr Edo Richard of <\/span><\/span><span style=\"margin: 0px; color: windowtext; font-family: 'Arial',sans-serif; text-decoration: none;\"><span style=\"font-size: medium;\">Radboud UMC<\/span><\/span><span style=\"margin: 0px; color: windowtext; font-family: 'Arial',sans-serif;\"><span style=\"font-size: medium;\"> spoke from the physician\u2019s perspective. There was a lively discussion about emerging ethical issues within EPAD during this session, which continued into the WP8 breakout session at the end of the day. There were also dedicated breakout sessions for WP2, 3 and 4 at this time.<\/span><\/span><\/p>\n<p><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">The first and final day focused on the Proof of Concept (PoC) Study Platform \u2013 progress so far and looking to the future. Presentations were done on PoC master protocol, statistics and CSF cut-off values. In addition, next steps were discussed including governance and operational aspects. Finally, the meeting closed with all delegates invited to the next General Assembly, which will take place in Amsterdam in May 2018.<\/span><\/span><\/p>\n<p><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">The highlight was undoubtedly the presence of an Edinburgh-based research participant Eileen Penman, a member of the EPAD Research Participant Panel, who is the first member of this Panel to attend an EPAD consortium meeting. <\/span><\/span><\/p>\n<p><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">If you want to keep up to date with our progress, you can also follow us on Facebook (<\/span><\/span><a href=\"https:\/\/fr-fr.facebook.com\/IMIEPAD\/\"><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #0563c1;\">https:\/\/fr-fr.facebook.com\/IMIEPAD\/<\/span><\/span><\/a><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">) and Twitter (<\/span><\/span><a href=\"https:\/\/twitter.com\/imi_epad\"><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #0563c1;\">@IMI_EPAD<\/span><\/span><\/a><span style=\"margin: 0px; font-family: 'Arial',sans-serif; font-size: 12pt;\"><span style=\"color: #000000;\">).<\/span><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>On 15-17 May, the EPAD project General Assembly took place in Stockholm, under the banner \u201cFrom Delivery to Data\u201d. It was hosted by the Karolinska Institutet and jointly sponsored by Boehringer Ingelheim and Lundbeck. The meeting provided a chance to gather everyone who work on the EPAD study to discuss its progress and future plans. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":1108,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-1107","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts\/1107","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/comments?post=1107"}],"version-history":[{"count":1,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts\/1107\/revisions"}],"predecessor-version":[{"id":10415,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts\/1107\/revisions\/10415"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/media\/1108"}],"wp:attachment":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/media?parent=1107"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/categories?post=1107"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/tags?post=1107"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}