{"id":2862,"date":"2019-01-17T10:59:09","date_gmt":"2019-01-17T08:59:09","guid":{"rendered":"https:\/\/alzheimer.noemi.lu\/?p=2862"},"modified":"2019-01-17T10:59:09","modified_gmt":"2019-01-17T08:59:09","slug":"interview-with-alejandro-laquidain","status":"publish","type":"post","link":"https:\/\/ep-ad.org\/index.php\/2019\/01\/17\/interview-with-alejandro-laquidain\/","title":{"rendered":"Interview with Alejandro Laquidain"},"content":{"rendered":"

Alejandro Laquidain is one of the more than 200 Spanish research participants of the EPAD project recruited within the research center of the Pasqual Maragall Foundation (Barcelona, Spain), the Barcelona\u03b2eta Brain Research Cente<\/a>r (BBRC).<\/p>\n

What motivates you to be a research participant in a research project like EPAD? <\/strong>The volunteering proposal presented by the Pasqual Maragall Foundation, together with the disease of my mother, deeply resonated and encouraged my brothers and myself to immediately get involved. From this time, everything has flowed easily due to the power, humanity and honesty of the project, the involvement and professionalism of the entire team led by Dr. Molinuevo and the personal and collective commitment that I believe we owe to people living with Alzheimer’s disease.<\/p>\n

You have joined the EPAD project on February 2017 and have already made several visits. Could you tell us about your experience? <\/strong>It has been incredible, positive and enriching. It is also an honour to collaborate in this project with a group that offers an exquisite treatment and affection. I appreciate their constant interest to improve and evolve in every single way, always with the same purpose: to better understand the disease in order to be able to prevent it. The personal satisfaction of being part of the study is enormous.<\/p>\n

What is it like to have a lumbar puncture<\/strong>? Personally, it has not caused me any concerns, neither during the procedure nor after it. It is easy to appreciate that the medical team knows exactly what they are dealing with. On the other hand, it is a few hours of tranquility and silence that I take advantage of to make introspection and reaffirmation in the project.<\/p>\n

You<\/strong> are now a member of the EPAD Participant Panel in Barcelona, which is composed of 8 research participants.<\/strong> Can you tell more about your discussions with the participant panel group?<\/strong> It is a diverse and great group! Ideas raise incessantly. Overall, our main intention is to contribute with something different to the project and look for what can concern such a diverse and heterogeneous group. Regarding this last point, we are currently proposing the use of some specific communication tools between research participants and the BBRC where these concerns can be addressed. Another issue we are working on is the preparation of a document on a \u201cLiving will\u201d. We believe it is important to reflect in a document the personal positions that should be respected by people living with Alzheimer’s disease.

What message would you like to send to the researchers and partners of the project? <\/strong>I want to congratulate them for the intensity and excellence in every tasks they are doing. We take for granted that they perceive the support, affection and gratitude of all the research participants, but just in case, we will never stop showing our gratitude to them! With regards to the sponsors, I can get a grasp of their feeling and implication in the project, but I encourage them to continue being there and try to attract other companies and entities with the aim to better understand the early stages of Alzheimer\u2019s disease and finally to prevent the disease.<\/p>\n\n\n

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Spanish:<\/p>\n\n\n\n

Alejandro Laquidain es uno de los m\u00e1s de 200 participantes del proyecto European Prevention of Alzheimer’s Dementia (EPAD) <\/a>en el centro de investigaci\u00f3n de la Fundaci\u00f3n Pasqual Maragall, el BarcelonaBeta Brain Research Center\u00a0(BBRC).<\/p>\n\n\n\n

Alejandro, \u00bfqu\u00e9 te mueve a ser voluntario de la investigaci\u00f3n en prevenci\u00f3n de la enfermedad de Alzheimer? <\/strong><\/p>\n\n\n\n

La propuesta de voluntariado presentada en su d\u00eda por la  Fundaci\u00f3n Pascual Maragall, unida al largo padecimiento de mi madre debido a la enfermedad, nos hizo saltar como un resorte a mis hermanos y a m\u00ed para ofrecernos como voluntarios. A partir de ese momento, todo ha fluido con facilidad debido a la potencia, la humanidad y la honestidad del proyecto, a la implicaci\u00f3n y la profesionalidad de todo el equipo que dirige el Dr. Molinuevo, y al compromiso personal y colectivo que  creo debemos a las personas que sufren Alzheimer.<\/p>\n\n\n\n

Te sumaste a EPAD en febrero del 2017 y ya has realizado diversas visitas del estudio. \u00bfC\u00f3mo ha sido tu experiencia? <\/strong><\/p>\n\n\n\n

Incre\u00edble, positiva, enriquecedora. Es, adem\u00e1s, un orgullo poder colaborar en este proyecto con un grupo humano que ofrece un trato exquisito, que raya en el mimo y del que aprecio el constante inter\u00e9s por mejorar y evolucionar en todos los sentidos, aunque siempre con un mismo fin: intentar conocer mejor la enfermedad para as\u00ed poder combatirla. La satisfacci\u00f3n personal de formar parte del estudio es enorme.<\/p>\n\n\n\n

\u00bfY con la punci\u00f3n lumbar?<\/strong><\/p>\n\n\n\n

Personalmente, no me ha causado ning\u00fan problema, ni durante ni despu\u00e9s de la misma. Es f\u00e1cil apreciar que el equipo m\u00e9dico especialista sabe perfectamente lo que se lleva entre manos y lo demuestra en todo momento. Son, por otro lado, unas horas de total tranquilidad y silencio que aprovecho para hacer introspecci\u00f3n y reafirmaci\u00f3n en el proyecto.<\/p>\n\n\n\n

Ahora eres miembro del EPAD Panel en Barcelona y peri\u00f3dicamente os reun\u00eds para debatir diferentes aspectos relacionados con el proyecto o que os preocupan. \u00bfCu\u00e1les son los puntos que ten\u00e9is actualmente sobre la mesa? <\/strong><\/p>\n\n\n\n

\u00a1Es un grupo variopinto y genial! En l\u00edneas generales, nuestra principal intenci\u00f3n es aportar algo distinto al proyecto e imaginar lo que puede preocupar a un grupo tan diverso y heterog\u00e9neo como es el de los Voluntarios. Respecto a este \u00faltimo punto, actualmente estamos proponiendo la utilizaci\u00f3n de alg\u00fan tipo de herramienta de comunicaci\u00f3n entre los Voluntarios y la Fundaci\u00f3n donde se puedan volcar estas inquietudes. 
\nOtro de los temas en el que estamos trabajando es en la confecci\u00f3n de un documento sobre un Testamento Vital. Creemos que es importante dejar plasmado en un documento cu\u00e1les son las posturas personales que se deben respetar en caso de sufrir Alzheimer.<\/p>\n\n\n\n

Por \u00faltimo, \u00bfqu\u00e9 mensaje lanzar\u00edas a los investigadores y partners del proyecto?<\/strong><\/p>\n\n\n\n

A los primeros, felicitarlos por la intensidad volcada en todo lo que est\u00e1n haciendo. Suponemos que perciben el apoyo, el cari\u00f1o y el agradecimiento de todos los Voluntarios, pero nunca nos cansaremos de transmitirlo. De los patrocinadores y partners, intuyo la implicaci\u00f3n que sienten por el proyecto, pero los animo a que contin\u00faen estando all\u00ed y que traten de atraer a otras empresas y entidades con la idea de conseguir, entre todos, poder entender y finalmente luchar contra la enfermedad del Alzheimer.<\/p>\n","protected":false},"excerpt":{"rendered":"

Alejandro Laquidain is one of the more than 200 Spanish research participants of the EPAD project recruited within the research center of the Pasqual Maragall Foundation (Barcelona, Spain), the Barcelona\u03b2eta Brain Research Center (BBRC). What motivates you to be a research participant in a research project like EPAD? The volunteering proposal presented by the Pasqual […]<\/p>\n","protected":false},"author":1,"featured_media":2863,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-2862","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts\/2862","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/comments?post=2862"}],"version-history":[{"count":0,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts\/2862\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/media\/2863"}],"wp:attachment":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/media?parent=2862"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/categories?post=2862"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/tags?post=2862"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}