{"id":4999,"date":"2020-11-17T19:04:59","date_gmt":"2020-11-17T17:04:59","guid":{"rendered":"https:\/\/alzheimer.noemi.lu\/?p=4999"},"modified":"2024-06-28T08:47:23","modified_gmt":"2024-06-28T07:47:23","slug":"addi-launches-new-workbench-to-foster-greater-global-research-innovation-and-accelerate-breakthroughs-in-alzheimers-disease-and-related-dementias","status":"publish","type":"post","link":"https:\/\/ep-ad.org\/index.php\/2020\/11\/17\/addi-launches-new-workbench-to-foster-greater-global-research-innovation-and-accelerate-breakthroughs-in-alzheimers-disease-and-related-dementias\/","title":{"rendered":"The AD Data Initiative launches new Workbench to foster greater global research innovation and accelerate breakthroughs in Alzheimer\u2019s disease and related dementias"},"content":{"rendered":"<p>The Alzheimer\u2019s Disease Data Initiative (AD Data Initiative) has launched its Alzheimer\u2019s disease (AD) <a href=\"https:\/\/www.alzheimersdata.org\/ad-workbench\" target=\"_blank\" rel=\"noopener noreferrer\"><em>Workbench<\/em><\/a>, a cloud-based platform for scientists to accelerate discoveries and innovations for AD and related dementias. The AD Data Initiative is a new global effort that aims to advance AD innovation by connecting researchers with the data needed to generate insights and inform the development of improved treatments and diagnostic tools. The AD Data Initiative was created by a coalition of partners to increase sharing of dementia-related data among researchers and provide new ways to experiment with the most trusted datasets.<\/p>\n<p>We are pleased that the AD Data Initiative platform will be the host (via <a href=\"https:\/\/www.aridhia.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Aridhia<\/a>) of the EPAD data.<\/p>\n<p>For decades, scientists have made limited progress in Alzheimer\u2019s research and therapeutics, even though Alzheimer\u2019s disease is a leading cause of death around the world with care estimated to cost more than $1 trillion annually. Now more than ever, greater data sharing is needed to spark innovative discoveries in AD research. Advancement is possible\u2014limited access to data should not be a barrier.<\/p>\n<p>The idea for the AD Data Initiative was initiated in 2018, after Bill Gates brought together a coalition of partners interested in improving AD and related dementias data sharing with the aim of moving innovation further and faster toward better treatments and diagnostic tools.<\/p>\n<p>\u201cThe need for new and more effective treatments for Alzheimer\u2019s disease has never been greater. A better understanding of the disease will help us detect and diagnose it earlier. It should be easier for people to find, enroll and stay in clinical trials, and we must accelerate the pace of discovery and innovation. Data can play a critical role in breakthroughs,\u201d said Bill Gates. \u201cData is a tremendously powerful tool that can be better harnessed to understand and reduce the impact of AD. It\u2019s what the AD <em>Workbench <\/em>is designed to do.\u201d<\/p>\n<p>The AD <em>Workbench<\/em> will facilitate interoperability across data platforms and enable researchers to work with multiple datasets. With a federated model of data sharing, the AD <em>Workbench<\/em> allows permissioned researchers to import their datasets, access, and transfer data from other platforms. It also allows them to work securely with anonymized datasets that are unable to be transferred due to data privacy, regulation and local laws. Within the platform, users have a personalized workspace where they can ensure quality control, harmonize data, and analyze data within the platform. Soon the AD <em>Workbench<\/em> will provide researchers and data scientists with the ability to share code and crowdsource ideas.<\/p>\n<p>\u201cThere are no limits to the innovation that can arise from researchers working together with more data than ever before,\u201d said the AD Data Initiative Executive Director Tetsu Maruyama. \u201cThat\u2019s what makes the <em>Workbench<\/em> so exciting \u2013 and it\u2019s just the beginning. The <em>Workbench<\/em> will continue to evolve with input and data from the research community, allowing scientists to work with new tools and more data.\u201d<\/p>\n<p>The Workbench will increase access to many types of data that will both speed our basic understanding of AD and related dementias and progress toward new treatments by:<\/p>\n<ul>\n<li>Allowing scientists to combine data from multiple studies to strengthen understanding beyond what could be learned from a single study;<\/li>\n<li>Enabling researchers to revisit existing datasets with new analytical methods and technologies; and<\/li>\n<li>Accelerating future research by breaking down traditional research barriers.<\/li>\n<\/ul>\n<p>\u201cThere is tremendous power in data sharing and the ability to harmonize data across multiple groups,\u201d said Dr. Reisa Sperling, Director, Center for Alzheimer Research and Treatment, Brigham and Women\u2019s Hospital. \u201cThe AD <em>Workbench<\/em> will make it easier to access and explore data in new ways and expand collaboration opportunities.\u201d<\/p>\n<p>The AD Data Initiative will foster an environment that supports and facilitates researchers\u2019 abilities to share data by providing resources. In addition to the AD <em>Workbench<\/em>, the AD Data Initiative has collated existing tools and created new tools that will help researchers navigate regulatory frameworks and policies that are often barriers to data sharing. The AD Data Initiative will also provide grants to fund researchers and organizations that seek to expand data access and sharing using the AD <em>Workbench<\/em>. Increasing access to the best and most trusted datasets is one of the most effective ways to accelerate progress toward more effective treatments, and the diagnostics that can help physicians and people with dementia. Together, these breakthroughs will drastically reduce the impact of AD on patients, their families, and the healthcare system.<\/p>\n<p>For more information please visit: <a href=\"http:\/\/www.Alzheimersdata.org\" target=\"_blank\" rel=\"noopener noreferrer\">www.Alzheimersdata.org<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Alzheimer\u2019s Disease Data Initiative (AD Data Initiative) has launched its Alzheimer\u2019s disease (AD) Workbench, a cloud-based platform for scientists to accelerate discoveries and innovations for AD and related dementias. The AD Data Initiative is a new global effort that aims to advance AD innovation by connecting researchers with the data needed to generate insights [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5000,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[],"class_list":["post-4999","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts\/4999","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/comments?post=4999"}],"version-history":[{"count":1,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts\/4999\/revisions"}],"predecessor-version":[{"id":10355,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/posts\/4999\/revisions\/10355"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/media\/5000"}],"wp:attachment":[{"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/media?parent=4999"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/categories?post=4999"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ep-ad.org\/index.php\/wp-json\/wp\/v2\/tags?post=4999"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}