On 13 August 2015, EPAD’s ethics working group held an internal workshop in Amsterdam.

Most of the meeting was taken up with discussions about issues to be covered in the EPAD ethical guidance document for clinicians and researchers involved in the project (in particular informed consent, disclosure of possible risk status and dealing with incidental findings).

The group also briefly discussed progress with the subject panel focus group discussions which will be carried out in the UK, Spain and Sweden, and with Alzheimer Europe’s European Working Group of People with Dementia later this year.