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European Prevention of Alzheimer's Dementia Consortium
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Your support makes EPAD possible

The EPAD Research Participant Panel

It is important to the EPAD team that we build a conversation with our participants and give them an active role in influencing the design, conduct and reporting of research. Our participants are our partners in this project too. To support this, the EPAD Research Participant Panel has been established. Currently, there are panels running in Edinburgh and Barcelona, and more are planned. Eileen is one of our participants and a member of the EPAD Research Participant Panel in Edinburgh – read Eileen’s EPAD story. Eileen, EPAD research participant at the Edinburgh trial delivery centre

We have also worked with potential EPAD participants to inform our ethics guidance and practice. The Approaches to the Communication of Alzheimer’s disease Risk (ACAR) study, led by our ethics team, explored potential EPAD participants’ perspectives on the potential benefits, risks and implications of learning test results related to the risk of Alzheimer’s disease and developed recommendations for communicating this information.

Related posts:

EPAD Research Participant Panel invited to speak at the IMI Stakeholder Forum

First meeting of the EPAD Research Participant Panel in Barcelona

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Latest News
  • The final EPAD dataset is now available to the entire research community
    2020-11-30
  • ALZFORUM
    Alzforum conference blog mentions EPAD
    2020-11-30
  • EPAD v1500 dataset
    New webpage dedicated to EPAD data and samples on the EPAD website
    2020-11-18
  • ADDI launches new Workbench to foster greater global research innovation and accelerate breakthroughs in Alzheimer’s disease and related dementias
    2020-11-17
  • New paper investigating the prediction of Alzheimer’s disease biomarker status
    2020-11-12
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EPAD
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@IMI_EPAD

Thanks Aridhia for your partnership to facilitate the latest and final @IMI_EPAD #data release. This contains the data for over 2000 participants of the EPAD Longitudinal Cohort Study. Researchers who are interested to access to this dataset can visit ep-ad.org/erap twitter.com/aridhia/status…

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1:25 pm · 2021-01-25
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EPAD
@IMI_EPAD

We would like to thank all our followers! A massive thanks also goes to our research participants & members for all their support! Looking back on the years of the @IMI_EPAD project, here's key pictures took at major events. Have a safe & Happy New Year! youtu.be/FeYsOBOhCeo

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8:55 am · 2021-01-18
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EPAD
@IMI_EPAD

The videos from #30AEC are online! Check out the @IMI_EPAD presentations on #data sharing by @rodrigobarnes (@aridhia) & Colin Veal (@uniofleicester). Thanks @IMI2_NEURONET and @AlzheimerEurope for giving us the opportunity to present our work. imi-neuronet.org/2020-virtual… twitter.com/IMI2_NEURONET/…

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8:43 am · 2021-01-15
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@IMI_EPAD

Authors investigated #data from nine studies, including @IMI_EPAD, comprising a total of 60,004 assessed participants. If you want to explore the #Alzheimer's disease data landscape, visit adata.scai.fraunhofer.de @BirkenbihlC @ApitiusHofmann @ddomingof @Simon_Lovestone @TVB_cloud

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7:56 am · 2021-01-11
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@IMI_EPAD

Numerous studies have collected #Alzheimer's disease cohort #data sets. @BirkenbihlC and colleagues have evaluated the Alzheimer's disease data landscape from a patient‐level data‐centric perspective. @IMI_EPAD @IMI_EMIF @NACCALZ alz-journals.onlinelibrary.wi…

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7:48 am · 2021-01-11
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This work has received support from the EU/EFPIA Innovative Medicines Initiative Joint Undertaking EPAD grant agreement nº 115736

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