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European Prevention of Alzheimer's Dementia Consortium
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Taking part in EPAD Alzheimer’s disease research

The EPAD team across Europe looked to find people who were suitable to take part in a clinical trial for medications which expected to delay or prevent Alzheimer’s disease.

Research participants came from all walks of life, but the one thing that they had in common is that they didn’t have a dementia diagnosis. It was important that we had a wide range of people with different risks of developing Alzheimer’s disease in order to understand the brain changes linked to the development of dementia.

Who participated in EPAD?

We looked for participants who:

  • Were aged 50 or over
  • Had no dementia diagnosis
  • Were willing to consider taking part in clinical trials
  • Were willing to take part in regular study assessments involving memory tests, brain scans and research samples (blood, saliva, spinal fluid and urine tests)
  • Had a friend or relative who knew them well and was willing to be their study partner throughout the study

How participants were involved?

There was a number of ways to be involved in EPAD: via ongoing cohort studies, referral clinics and national registers.

Cohort studies: Potential research participants were selected from ongoing cohort studies in Europe, also known as parent cohorts.

Referral clinics: EPAD had a network of trial delivery centres recruiting research participants across Europe.

Joining the EPAD Study

Potential EPAD participants were contacted through their existing parent cohort. If they were invited and happy to join the EPAD study, they became a participant in the EPAD Longitudinal Cohort Study, or LCS. A longitudinal cohort study was a research method in which data was gathered for the same individuals repeatedly over a period of time. If you was an EPAD LCS participant, it involved regular assessments over several years.

 

Find out more about EPAD study visits.

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Registration is now open for the upcoming #NeuroToolKit Data Hackathon! Join fellow experts and investigate biomarkers in #Alzheimers disease. You'll work with @IMI_EPAD datasets by utilizing @AlzData resources. For more information: ep-ad.org/addi-neurotool… twitter.com/IMI_EPAD/statu…

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6:56 am · 2022-05-18
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📢 Four abstracts with @IMI_EPAD data have been accepted for #AAIC22, including 3 posters & 1 oral presentation! Looking forward to meeting you in San Diego! @LuigiLorenzini1 @GregorySarah @fpmaragall @amsterdamumc @CenDemPrevent twitter.com/alzassociation…

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10:45 am · 2022-04-28
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The @IMI_EPAD Research Participant Panel has been established to give participants an active role in influencing the design, conduct and reporting of research. Want to know more? Watch this recording. #31AEC @AlzheimerEurope @IMI2_NEURONET @CenDemPrevent youtu.be/GObdDorTOE0?t=…

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6:42 am · 2022-04-20
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Listen to @GregorySarah from @CenDemPrevent talking about the associations between stressful life events, #Alzheimer's disease biomarkers and cognition in the @IMI_EPAD Longitudinal Cohort Study at the @AlzheimerEurope conference #31AEC. youtu.be/loZSphK4s9g

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9:45 am · 2022-04-11
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We are delighted to announce that the first study participant for the @IMI_EPAD Scotland study was seen today! It is the first national initiative to have started study recruitment. @craig_ritchie68 @CenDemPrevent For more info, visit our website⤵️ ep-ad.org/first-national… pic.twitter.com/4Z46mokA88

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12:44 pm · 2022-04-07
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This work has received support from the EU/EFPIA Innovative Medicines Initiative Joint Undertaking EPAD grant agreement nº 115736

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