Edinburgh Dementia Prevention are hosting a brain health summer school on Monday 26 September – Thursday 29 September 2022, at St Leonard’s Hall, Edinburgh. It is is a 4-day interactive course designed principally for trainee and qualified clinicians, nurses and allied health professionals working in (or with an aim to work in) brain health and…
DetailsThe Alzheimer’s Association International Conference is the largest and most influential international meeting dedicated to advancing dementia science. Each year, AAIC convenes the world’s leading basic science and clinical researchers, next-generation investigators, clinicians and the care research community to share research discoveries that’ll lead to methods of prevention and treatment and improvements in the diagnosis…
DetailsThe Alzheimer’s Disease Data Initiative (ADDI) is calling on experts from around the world to join them in a two-week virtual Data Hackathon. In self-selected teams of two to four people, participants will be investigating the potential of different biomarkers in Alzheimer’s disease. Teams will be using the new NeuroToolKit (NTK) app, developed by Roche…
DetailsOn 9 May, the members of the Neuronet (Efficiently Networking European Neurodegeneration Research) programme were pleased to announce the launch of an updated version of their Decision Tool to support engagement with Regulatory and Health Technology Assessment (HTA) bodies. The Decision Tool now provides a clickable overview of the processes and procedures for HTA and…
DetailsWe are delighted to announce that the first study participant for the EPAD Scotland study was seen today at the University of Edinburgh in the UK. The EPAD Scotland study is the first follow-on study to the large pan-European EPAD Longitudinal Cohort Study (LCS) which finished study visits in 2020. The European Prevention of Alzheimer’s…
DetailsThe European Prevention of Alzheimer’s Dementia (EPAD) consortium, in their partnership with Aridhia and Alzheimer’s Disease Data Initiative (ADDI), are delighted to announce that the EPAD genomic data has been incorporated into the Alzheimer’s Disease (AD) Workbench to provide even greater value to the global neuroscience research community. A key achievement of the EPAD project…
DetailsA new article entitled “Lived time and the affordances of clinical research participation” has recently been published in the journal Sociology of Health & Illness. In this article, authors address the problem of participation and the dominant focus on motivations in clinical research. They explore participation as a relational mode of ‘being in time’ in…
DetailsOn 17 November 2020, a coalition of partners including the US Alzheimer’s Association, Gates Ventures and the Wellcome Trust launched the Alzheimer’s Disease Data Initiative (ADDI) and its Alzheimer’s Disease (AD) Workbench. Designed as a platform for federated data sharing, the AD Workbench aims to facilitate interoperability across existing data platform, by enabling researchers to…
DetailsThe EPAD BioRepository team has recently successfully sent 3,000 samples for RNA analyses in Germany. These samples were collected annually from research participants throughout their participation in the EPAD Longitudinal Cohort Study. Once analyses are complete, the data will be integrated into the main EPAD database, accessible via the Alzheimer’s Disease Workbench of the Alzheimer’s…
DetailsThe EFSPI 6th Regulatory Statistics Workshop was held online from 13-15 September. This workshop discussed opportunities and challenges of statistical topics between regulators, academics, and industry. Philip Hougaard from Lundbeck presented the EPAD project, with an oral presentation entitled “Designing the EPAD trial platform: key issues”. In his talk, he gave an overview of the…
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