• Contact
  • EPAD Academy
Top Bar Menu
TwitterFacebookYouTube
Search...
EPADEPAD
EPAD
European Prevention of Alzheimer's Dementia Consortium
  • Home
  • About
    • Welcome to EPAD
    • Project Objectives
    • Project Structure
    • EPAD Partners
    • Coordination & Management
    • EPAD Q&A
  • Our research
    • Participation in EPAD
      • Participation in EPAD Cohort
      • EPAD Study Visits
      • Trial Locations
      • Participation FAQs
    • The Participant’s Experience
      • The Research Participant Panel
      • EPAD Stories
    • The EPAD platform
      • The EPAD Platform
      • EPAD Benefits
      • Clinical Candidate Selection
      • EPAD FAQs
      • Research Resources
  • Open Access Data
    • Overview
    • Access
    • Data
    • MRI Images
  • Sample Access
  • News & Publications
    • Latest News
    • Newsletters
    • Publications
    • Videos
Menu back  

Access

EPAD offers a way of accessing the data, samples and image data collected during the EPAD Longitudinal Cohort Study (LCS), to academic researchers, institutions and companies from all over the world. This is shared through secure online Workspaces.

To access the data, you will need to make an online request via the Alzheimer’s Disease Workbench of the Alzheimer’s Disease Data Initiative (ADDI) here.

Datasets available

  • EPAD LCS V500.0 (published 19th May 2019) – doi:10.34688/epadlcs_v500.0_19.05.10
  • EPAD LCS V1500.0 (published 29th November 2019) – doi:10.34688/epadlcs_v1500.0_19.11.29
  • EPAD LCS V500.1 (published 4th May 2020) – doi:10.34688/epadlcs_v500.1_20.04.29
  • EPAD LCS V.IMI (published 30th October 2020) – doi:10.34688/epadlcs_v.imi_20.10.30

To learn what data and associated metadata is available in the EPAD data releases before you apply, please refer to the relevant release’s Data Information Pack in the Supporting Media section below.

How do I apply?

All the data collected and processed during the IMI period of EPAD are now available in the Alzheimer’s Disease Workbench to provide even greater value to the global neuroscience research community. Visit the ADDI Portal https://portal.addi.ad-datainitiative.org/ to sign in with your existing account or sign up if you don’t have an account yet. You need to be a registered user to be able to access the Alzheimer’s Disease Workbench. If you do not have an account, follow the instructions on registering for a Workspaces account page. After creating an account and logging in, you can request a workspace to access the EPAD data.

Begin the application process

What happens next?

For data access only, your application will be processed within several business days.
For images application, the turnaround time for it is approximately four weeks.

How to publish papers with EPAD data?

If you publish results that were generated using the EPAD data and/or samples then we do request acknowledgement of this and the grants that supported EPAD. Please refer to the EPAD Policy document for Publications in the Supporting Media section below. Further details are provided in this document, which outlines the policies for publication and publication credits for those who use EPAD data and/or samples.


If you have any technical difficulties accessing Aridhia DRE, please don’t hesitate in contacting us by filling in the contact form below.

Supporting media

Protocol

  • EPAD Protocol Version 5.0

V500.0

  • Data Information Pack (V500.0)

V1500.0

  • Data Information Pack (V1500.0)

V500.1

  • Data Information Pack (V500.1)

V.IMI

  • Data Information Pack (V.IMI)

Supplementary resources

  • EPAD RAVE eCRF
  • V.IMI Data Dictionary
  • V.IMI Data Access Terms and Conditions

Publications with EPAD data/samples

  • EPAD Policy for Publications

Contact

    First name*

    Surname*

    Email*

    Phone

    Organisation*

    Message*


    By sending your details, you confirm that you agree to the storing and processing of your personal data by EPAD as described in the privacy policy.


    *Required


    Share this page
    FacebookTwitterLinkedInGoogle+
    Latest News
    • Edinburgh Dementia Prevention Summer School 2022
      2022-06-30
    • EPAD at AAIC22!
      2022-06-30
    • ADDI NeuroToolKit Data Hackathon
      2022-05-17
    • The Neuronet Coordination and Support Action releases updated Decision Tool for engagement with Regulatory and Health Technology Assessment bodies
      2022-05-09
    • First national follow-on study to EPAD LCS launches
      2022-04-07
    View the EPAD Brochure
    thumbnail of EPAD brochure
    Speak to the EPAD team
    thumbnail of speech bubbles
    Twitter
    Twitter
    EPAD
    EPAD
    @IMI_EPAD

    The @CenDemPrevent Summer School, a 4-day interactive course on #brainhealth, is designed for clinicians, researchers and students. Space is limited, sign up quickly! 🗓️26-29 September 📍Edinburgh For more info, including programme⤵️ ep-ad.org/edinburgh-deme… pic.twitter.com/FSypbvWK4L

    reply retweet favorite
    12:38 pm · 2022-06-30
    Twitter
    EPAD
    EPAD
    @IMI_EPAD

    There’s still time to join the @AlzData #NeuroToolKit #Data Hackathon! Registration closes on 24 June! Participants will work with @IMI_EPAD datasets and utilise the tools on the #ADWorkbench. Interested in participating? ➡️alzheimersdata.org/hackathon twitter.com/IMI_EPAD/statu…

    reply retweet favorite
    7:21 am · 2022-06-22
    Twitter
    EPAD
    EPAD
    @IMI_EPAD

    Today, colleagues from @AlzData visited @CenDemPrevent to meet with those involved in various programmes including @IMI_EPAD @AD_PREVENT. Many relevant discussions and great catch-up! #BrainHealth #datasharing #collaboration @craig_ritchie68 @samdansobe @GregorySarah @CindyBirck pic.twitter.com/Mr3trKeuoz

    reply retweet favorite
    2:43 pm · 2022-06-15
    Twitter
    EPAD
    EPAD
    @IMI_EPAD

    Have a look on the new @AlzheimerEurope #DementiaInEurope magazine featuring an article on @IMI_EPAD and its collaboration with @AlzData to make our data findable, accessible and reusable. @craig_ritchie68 ⤵️ alzheimer-europe.org/resource… twitter.com/AlzheimerEurop… pic.twitter.com/vLuW3HMLUh

    reply retweet favorite
    1:09 pm · 2022-06-14
    Twitter
    EPAD
    EPAD
    @IMI_EPAD

    Registration will close tomorrow! Register now for the free #Brainhealth2022 conference, taking place next week in Edinburgh ⤵️ brainhealth.scot/brainhealth2… twitter.com/IMI_EPAD/statu…

    reply retweet favorite
    3:05 pm · 2022-06-09
    Copyright © 2015-2021 EPAD | Created by CMAST and Aridhia
    • Acronyms
    • Legal Notice
    • Privacy Policy
    Bottom Menu

    efpia-logo EU imi logo

    This work has received support from the EU/EFPIA Innovative Medicines Initiative Joint Undertaking EPAD grant agreement nº 115736

    This website uses cookies to improve your experience. Accept Read More
    Privacy & Cookies Policy

    Privacy Overview

    This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
    Necessary
    Always Enabled
    Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
    Non-necessary
    Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
    SAVE & ACCEPT