EPAD offers a way of accessing the data, samples and image data collected during the EPAD Longitudinal Cohort Study (LCS), to academic researchers, institutions and companies from all over the world. This is shared through secure online Workspaces.
To access the data, you will need to make an online request via the Alzheimer’s Disease Workbench of the Alzheimer’s Disease Data Initiative (ADDI) here.
To access the samples and MRI imaging data, you will also need to make an online request via the ADDI Alzheimer’s Disease Workbench here. Please note that the access to the EPAD samples and MRI imaging data will be accessible on the ADDI platform by end of October 2021.
- EPAD LCS V500.0 (published 19th May 2019) – doi:10.34688/epadlcs_v500.0_19.05.10
- EPAD LCS V1500.0 (published 29th November 2019) – doi:10.34688/epadlcs_v1500.0_19.11.29
- EPAD LCS V500.1 (published 4th May 2020) – doi:10.34688/epadlcs_v500.1_20.04.29
- EPAD LCS V.IMI (published 30th October 2020) – doi:10.34688/epadlcs_v.imi_20.10.30
To learn what data and associated metadata is available in the EPAD data releases before you apply, please refer to the relevant release’s Data Information Pack in the Supporting Media section below.
How do I apply?
All the data collected and processed during the IMI period of EPAD are now available in the Alzheimer’s Disease Workbench to provide even greater value to the global neuroscience research community. Visit the ADDI Portal https://portal.addi.ad-datainitiative.org/ to sign in with your existing account or sign up if you don’t have an account yet. You need to be a registered user to be able to access the Alzheimer’s Disease Workbench. If you do not have an account, follow the instructions on registering for a Workspaces account page. After creating an account and logging in, you can request a workspace to access the EPAD data.
You will be able to access the EPAD samples and MRI imaging data on the ADDI Portal by end of October 2021.
What happens next?
For data access only, your application will be processed within several business days.
For access to data with corresponding biological samples or MRI DICOM data, your application will be forwarded to the relevant Research Access Committee for consideration/approval. You will be contacted by the chair of the committee within 7-10 business days.
How to publish papers with EPAD data?
If you publish results that were generated using the EPAD data and/or samples then we do request acknowledgement of this and the grants that supported EPAD. Please refer to the EPAD Policy document for Publications in the Supporting Media section below. Further details are provided in this document, which outlines the policies for publication and publication credits for those who use EPAD data and/or samples.
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