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European Prevention of Alzheimer's Dementia Consortium
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Your support makes EPAD possible

The EPAD Research Participant Panel

It is important to the EPAD team that we build a conversation with our participants and give them an active role in influencing the design, conduct and reporting of research. Our participants are our partners in this project too. To support this, the EPAD Research Participant Panel has been established. Currently, there are panels running in Edinburgh and Barcelona, and more are planned. Eileen is one of our participants and a member of the EPAD Research Participant Panel in Edinburgh – read Eileen’s EPAD story. Eileen, EPAD research participant at the Edinburgh trial delivery centre

We have also worked with potential EPAD participants to inform our ethics guidance and practice. The Approaches to the Communication of Alzheimer’s disease Risk (ACAR) study, led by our ethics team, explored potential EPAD participants’ perspectives on the potential benefits, risks and implications of learning test results related to the risk of Alzheimer’s disease and developed recommendations for communicating this information.

Related posts:

EPAD Research Participant Panel invited to speak at the IMI Stakeholder Forum

First meeting of the EPAD Research Participant Panel in Barcelona

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Latest News
  • Closing EPAD article published in the Alzheimer Europe magazine
    2021-02-24
  • Alzheimer Europe launches a report on data sharing in dementia research
    2021-02-23
  • Local actions to keep the EPAD Longitudinal Cohort data collection going
    2021-02-17
  • Neuronet releases its Knowledge Base dashboard
    2021-02-01
  • The final EPAD dataset is now available to the entire research community
    2020-11-30
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@IMI_EPAD

The latest @AlzheimerEurope #newsletter includes an article on the first local @IMI_EPAD community meeting held last month among the Scottish research sites and collaborators who have been involved in the EPAD Longitudinal Cohort Study. Read more here: bit.ly/Feb2021AEnews twitter.com/AlzheimerEurop…

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3:26 pm · 2021-03-03
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@AD_PREVENT @alzassociation @alzheimerssoc Congratulations to all the team 👏

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7:03 am · 2021-03-01
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.@AlzheimerEurope has published a new edition of its “Dementia in Europe” magazine. It includes a closing article on @IMI_EPAD. Our co-leads @craig_ritchie68 and Serge Van der Geyten, reflect on the achievements of the project. Download the PDF here: bit.ly/DementiaInEuro… twitter.com/AlzheimerEurop…

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12:40 pm · 2021-02-24
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Last week, we held the first local @IMI_EPAD community meeting among the Scottish research sites, collaborators, academics & scientists who have been involved in our Longitudinal Cohort Study and now continue to contribute to the study locally More info⤵️ ep-ad.org/2021/02/17/loc… pic.twitter.com/MTKmanCURk

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6:51 am · 2021-02-24
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Check out the new @AlzheimerEurope report on #DataSharing in #dementia #research, which reviews recent changes in EU research policy and sets out recommendations to improve data sharing. It includes case studies from ADNI, @IMI_EPAD and @IMI_EMIF. ⬇️ Bit.ly/DataSharing_AE twitter.com/AlzheimerEurop…

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2:39 pm · 2021-02-23
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