Taking part in research can be a truly rewarding experience. We should know! In EPAD, we have created a unique family bringing together expertise from across Europe. Patients and the public feature throughout EPAD research, most prominently as research participants.
We are committed to involving actual and potential research participants as much as possible in the development of the project, empowering everyone to play an active role in our progress.
The value of patient, public and participant involvement (PPPI) in research is increasingly recognised as providing practical benefits for the research process and as important in establishing an ongoing relationship with research participants that reciprocates their contribution and interest in the study. It helps establish accountability and transparency between the study goals and the study population and provides an opportunity for researchers to respond to participants’ concerns. This all leads to higher-quality research with greater impact.