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The Alzheimer’s Disease Data Initiative supports EPAD

2020-11-06News
The Alzheimer’s Disease Data Initiative (ADDI) aims to move Alzheimer’s disease (AD) innovation further and faster by connecting researchers with the data they need to generate insights to inform development of new, better treatments and diagnostic tools for AD and related dementias.
We are pleased that ADDI is supporting the EPAD project.

In 2016, EPAD began a longitudinal cohort study that screened more than 2,000 participants to collect a wide range of cognitive, clinical, neuroimaging and biomarker data to help further our understanding of the early stages of Alzheimer’s disease. The current EPAD database, provided by Aridhia, is open-access, ensuring the use of the data for the Alzheimer’s disease research community worldwide. Data access is free to all researchers.

Three databases have been released:

  1. EPAD LCS V500.0, which includes data from the first 500 people to enter the cohort;
  2. EPAD LCS V1500.0, which includes data from the first 1,500 people to enter the cohort; and
  3. EPAD LCS V500.1, which includes updated data from the first 500 participants, including one-year follow-up data.

A fourth dataset yet to be released includes all complete data up to the date the study was halted due to Covid-19 and the subsequent end of the IMI grant. The database contains cognitive (e.g. RBANS, MMSE, CDR), clinical (e.g. medical history, medications), biomarker (APOE, [CSF] Aβ42, tau), and neuroimaging and lifestyle risk factor (sleep, diet, traumatic life events) data sets reflecting participants with a range of disease severities from normal aging to prodromal Alzheimer’s dementia.

New data collection from emerging national studies will be incorporated into the AD Workbench of ADDI to provide even greater value to the global neuroscience research community.

You can find more information here: https://www.alzheimersdata.org/projects/epad
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Latest News
  • Edinburgh Dementia Prevention Summer School 2022
    2022-06-30
  • EPAD at AAIC22!
    2022-06-30
  • ADDI NeuroToolKit Data Hackathon
    2022-05-17
  • The Neuronet Coordination and Support Action releases updated Decision Tool for engagement with Regulatory and Health Technology Assessment bodies
    2022-05-09
  • First national follow-on study to EPAD LCS launches
    2022-04-07
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The @CenDemPrevent Summer School, a 4-day interactive course on #brainhealth, is designed for clinicians, researchers and students. Space is limited, sign up quickly! 🗓️26-29 September 📍Edinburgh For more info, including programme⤵️ ep-ad.org/edinburgh-deme… pic.twitter.com/FSypbvWK4L

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12:38 pm · 2022-06-30
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There’s still time to join the @AlzData #NeuroToolKit #Data Hackathon! Registration closes on 24 June! Participants will work with @IMI_EPAD datasets and utilise the tools on the #ADWorkbench. Interested in participating? ➡️alzheimersdata.org/hackathon twitter.com/IMI_EPAD/statu…

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7:21 am · 2022-06-22
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Today, colleagues from @AlzData visited @CenDemPrevent to meet with those involved in various programmes including @IMI_EPAD @AD_PREVENT. Many relevant discussions and great catch-up! #BrainHealth #datasharing #collaboration @craig_ritchie68 @samdansobe @GregorySarah @CindyBirck pic.twitter.com/Mr3trKeuoz

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2:43 pm · 2022-06-15
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Have a look on the new @AlzheimerEurope #DementiaInEurope magazine featuring an article on @IMI_EPAD and its collaboration with @AlzData to make our data findable, accessible and reusable. @craig_ritchie68 ⤵️ alzheimer-europe.org/resource… twitter.com/AlzheimerEurop… pic.twitter.com/vLuW3HMLUh

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1:09 pm · 2022-06-14
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Registration will close tomorrow! Register now for the free #Brainhealth2022 conference, taking place next week in Edinburgh ⤵️ brainhealth.scot/brainhealth2… twitter.com/IMI_EPAD/statu…

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3:05 pm · 2022-06-09
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